22 May, 2018.
Carol Monaghan, MP, tabled several questions about M.E. recently in parliament. This one about biomedical research resulted in a rather full response from the minister of state for health and social care.
Biomedical research funding
Carol Monaghan MP (Glasgow North West).
“To ask the Secretary of State for Health and Social Care, how much funding from the public purse he plans to allocate to biomedical research into Myalgic Encephalomyelitis in the current financial year.”
Answered by Caroline Dinenage MP Minister of State (Department of Health and Social Care):
“In the period in question, the major National Institute for Health Research (NIHR) funding for biomedical research was through its Biomedical Research Centres and Units.
“These support research funded by the NIHR itself and also research funded by other public, charity and industry research funders.
“The level of funding for biomedical research into chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) for each financial year can be found in the table below. The funding for this research came from a combination of funders.
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
“The NIHR Clinical Research Network (CRN) provides the infrastructure that allows high-quality clinical research funded by charities, research funders and life-sciences industry to be undertaken throughout the National Health Service.
“The level of funding for biomedical research into CFS/ME for each financial year can be found in the table below. The funding for this research came from a combination of the NIHR, the Medical Research Council (MRC) and medical research charities.
“Expenditure from the CRN coordinating centre itself is also outlined below:
| Financial Year | CRN funding for research, £ | Coordinating expenditure, £ |
| 2014-15 | 134,769 | 17,485 |
| 2015-16 | 125,176 | 17,796 |
| 2016-17 | 82,866 | 7,821 |
Continuing priority
“The MRC spend on research directly relating to CFS/ME can be found in the following table. Research into CFS/ME is a continuing priority for the MRC.
| Financial Year | £ |
| 2014-15 | 652,044 |
| 2015-16 | 287,234 |
| 2016-17 | 286,197 |
Caroline Dinenage MP Minister of State (Department of Health and Social Care).
“The NIHR and the MRC welcomes funding applications for research into any aspect of human health, including biomedical research into CFS/ME.
“It is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.
“On this basis, it is not possible to say how much funding is planned in the current financial year.
“The NIHR recognises that CFS/ME is a debilitating condition and is speaking with the United Kingdom CFS/ME Research Collaborative (CMRC) and patient representatives about how best we can support a joined up approach to high quality research into this complex disorder.”
Take Action
Please ask your MP (or MSP) to support the following parliamentary motions about M.E.
Click the relevant link below and you’ll find more information and a template email/letter you can send:
- Early Day Motion 1247 from Carol Monaghan, MP, which has now attracted 88 signatures in Westminster.
- Scottish Motion S5M-12207 from Gail Ross, MP, which has now attracted 46 signatures in Edinburgh.
The more support we can gain for these motions, then greater the chance the same MPs will support the call for a full debate which is currently being prepared by Carol Monaghan.
You can hear Ms. Monaghan explain the purpose of these motions in the latest episode of The ME Show – now available on our website and iTunes!
from ME Association
http://www.meassociation.org.uk/2018/05/monaghan-pmq-research-funding-23-may-2018/
from http://www.meassociation.org.uk
#cfsme
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