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BBC Radio Norfolk: An epic seven-year battle with local commissioning groups for suitable healthcare for M.E. sufferers | 17 August 2017

 


This was the breakfast show broadcast on BBC Radio Norfolk which ran for well over three hours. M.E. was featured throughout the programme with local group M.E. Support Norfolk and their unstinting campaign providing the focus.

They have been negotiating for seven years with clinical commissioning groups across Norfolk and Suffolk to improve provision for people with ME/CFS especially those severely affected.

Their efforts may finally have begun to bear fruit, but the current recommendation from NICE to not update or change its clinical guideline has not helped.

Barbara Robinson (pictured) is the group’s representative and is interviewed at length on BBC Radio Norfolk (and BBC Radio Suffolk).

You can click to the main parts of her interview, here (Norfolk) and read extracts from the Suffolk broadcast, here. 

However, I think it’s worth reading all that was said on Norfolk radio about M.E. and the struggle to get local acceptance of the disease and the battle for a suitable healthcare provision.

I hope to write more about the epic battle between M.E. sufferers and local clinical commissioning groups in Norfolk and Suffolk, in a future ME Association blog.

Dr Luis Nacal and Dr Eliana Lacerda from the UK ME/CFS Biobank team – the infrastructure project funded by the ME Association – provided a feasibility report and recommendations to the Norfolk and Suffolk clinical commissioners in 2016. It is hoped that this document will form the basis of new provision for ME/CFS in the area and we should hear more when commissioners meet in October.

 


BBC Radio Norfolk with Nick Conrad, broadcast, Tuesday, 15 August, 2017

Transcript by Russell Fleming, Content Manager, ME Association.
All errors, omissions, and some slight edits, are my own.
russell.fleming@meassociation.org. uk


50.00 minutes

Nick: A campaigner from Norfolk says people with a debilitating condition are being let down by the organisation which tells the NHS which treatments to use. Barbara Robinson is from ME Support Norfolk. She has a relative who suffers from chronic fatigue syndrome, or M.E., which causes a range of problems with the most common being extreme tiredness.

NICE is not working for sufferers…

Nick: She says that NICE, which sets the clinical guidelines, isn’t doing anything to see if new treatments could work for sufferers.

Barbara: ‘Unfortunately, the guidelines suggest there should be no testing, no further investigations of these other complex symptoms, and that renders people with no hope of getting to the bottom of their difficulties, resolving them, or improving on them.’

Nick: We’ll hear more from my interview with Barbara later in the programme, but first, what is it like to actually live with M.E.? If you do have experience of this, pick up the phone this morning and tell me.

Living with M.E.

Nick: Tracey Grint from Taverham, near Norwich, is 51. She was diagnosed with M.E. when she was 18 years old and it has dominated her life since then. Tracey has been telling her story to our reporter Clare Worthing.

Tracey: ‘Thirty-three years ago, I got glandular fever and I was really ill for a long time, and after that I kept being ill. I couldn’t go through a day without coming home and going to sleep, and I’d get virus after virus. And then I got shingles a few times and that wore me down as well. And it’s just gone from there really.’

Clare Worthing: ‘And what are the treatment options? How are you cared for?’

Tracey: ‘It’s self-management but there is support out there, within the national health, there is the M.E. side of it is quite good. I have medication as well to help with the muscle-pain, and also to help with the tiredness-side of things and the fatigue. So, yeah, that’s the kind of support I get. Also… I’ve gone dead, sorry.’

Clare: ‘No, no. That’s fine. Is that what you mean by the ‘brain-fog’? You find it quite hard to get the list of things you want to say?’

Tracey: ‘Yeah. It just, just gets in a muddle.’

Clare: ‘So, if someone goes to a GP and gets this diagnosis, there isn’t a medicine you are given that can help necessarily with the condition generally?’

Tracey: ‘No. No, there isn’t any medicine that says, ‘Here’s the pill for this. Take it and it will take the pain away and you’ll be able to have a good day.’

Son has become her carer…

Clare: ‘Obviously this is a hugely debilitating condition. I imagine it has had a big impact on your family, having to support you with this condition – become your carers?’

Tracey: ‘Yeah. Yeah it has. It’s been hard. My son hasn’t been able to have a normal family life. It’s difficult when his Mum can’t take him somewhere he wants to go because of her meds, or because she can’t drive, or really anything.’

 

Tina: ‘So socially, for him, he’s also had to become my carer, which means that he’s had to take on responsibilities for things that any child shouldn’t really have to take on responsibility for.’

Clare: ‘What can people like me do to be supportive with someone who has the condition? I imagine many people won’t have met anyone with M.E. and might not recognise if someone has it, and not really know what to do and how to help.’

Tracey: ‘It’s hard to tell people. And they also look at you sometimes and they can’t tell you’re in pain. They can’t tell you’re in so much pain and you’re so tired. Because on the outside you look so good. But it would be nice to just have the confidence to say to people, ‘I’ve got M.E. and I need help’, because sometimes it’s just a mixed reception out there – it’s difficult.’

New research from America…

Clare: ‘Part of the reason we’re interested in talking about M.E. at the moment is the research that has been done in America about new treatments, and some new options have been recommended, but the body that makes these decisions in the UK – that’s NICE – has said, ‘We’re not actually going to look again at these. We’re happy with the way people are being treated now.’ What are your views on that? Is that frustrating?’

Tracey: ‘I think for a lot of people, we look, we try and explain it and tell people what it is, but to have that recognised in America and I think Canada as well, but for us now to recognise it – and to label us with something that they don’t understand – is frustrating. I just wish that someone out there would just look into it more and really understand it.’

55.24

NICE statement…

Nick: That’s Tracey Gwint from Taverham. NICE, which sets the guidelines on the treatments given by the NHS, sent us the following statement. It said that there had been no new evidence to suggest that it should change its mind on how M.E. is treated. But it also said that it had been consulting on its rules and will make a final decision later this year.

Nick: Now, I would like to speak to you this morning about M.E. There’s a lot of people who, in the past, have doubted the condition even exists, and of course you can imagine – for those that suffer from it – they find that deeply offensive.

Nick: There has been of late quite a row-back on that school of thought, to recognition and also respect for the [condition] and the effect it has on those whose lives are limited because of M.E. – and a change in attitude has started across the healthcare profession.

Changing attitudes or persisting stigma…

Nick: That said, it takes time for everyone to get on board with the new way of thinking about the condition, so I’d like to talk about that as well. I am going to totally distance myself from these remarks – so please don’t think they are my thoughts – but in the past, rather offensively, people have said, ‘Is it M.E. or is it, me, me, me, me?’, which, as you can imagine, is a highly contentious, highly controversial and deeply offensive to those who are suffering from M.E.

Nick: But because of that stigma around the condition, there is a feeling that those with M.E. haven’t had the respect that they deserve, are not listened to, and not just by the public but the professionals as well at times, have been accused by some, of not taking the condition seriously enough – or even believing the condition exists.

Nick: I am just going to reiterate – they are not my views but that is what, in the past, some people have said that their experience of having M.E. and dealing with healthcare professionals has been.

Nick: So tell me, this morning, how hard is it to live with M.E. 01603 617321. If you are picking up the phone this morning, are you finally getting the recognition you deserve? Let’s talk about M.E. We don’t talk about it enough. Let’s talk about M.E. on the programme this morning. So, if you live with M.E. I’d like to have you on the show. 01603 617321 if you are picking up the phone this morning.

57.34


1.19.00

Nick: We’ve been talking about M.E. this morning, and the lack of services available to people who are suffering with M.E. We’re after your experiences. Alison, good morning…

Nick: Alison, ‘Good morning, Nick.’

Alison: ‘Thank you for calling the programme. So, for those who doubt M.E. or for those who don’t know what M.E. is, what is M.E. and how does it affect your life?’

About M.E.

Alison: ‘M.E. is a very debilitating illness. You get lots of muscle pain. Very fatiguing. People do doubt it but it’s very, very, real for sufferers. Sometimes it’s incredibly difficult to drag yourself out of bed in the morning, you can be driving along and just be desperate to go to sleep, you can be sitting at your workplace and just be overwhelmed with this sense of just needing to sleep. Huge pain. Tingling in your arms and legs. Cramps. Lots of tingling, lots of throbbing. Pain. The pain is incredible. And fatigue. Chronic fatigue. It’s incredibly debilitating.’

Nick: How hard is it to just get on with life, to hold down a job, to be a member of the family with responsibility? I guess it must be very tough…

It’s not going to beat me…

Alison: ‘It’s incredibly tough but you have to find ways to cope. I think the biggest thing is mental… overcoming it mentally. That’s the thing I found the way to cope.’

Alison: ‘It’s not going to beat me. I’ve got to be tough mentally and not let it get to me. You do find ways of coping. I’ve had to find ways of coping. But this thing is not going to beat me.’

Alison: ‘I’m clenching my fists as I’m talking to you – it is not going to beat me. The thing that got to me – years and years and years ago – I went to an M.E. centre and saw other people sitting in wheelchairs and at the time I was in my twenties, and I thought, ‘I’m not going to be like this’. It’s not going to get me. It’s not going to beat me.’

Alison: ‘I’m going to find a way of living a life – whatever that life is, I’m going to live it to the best of my ability and find a way of coping. And that’s hopefully what I’ve done.’

Alison: ‘But I find I can’t tell people I’ve got it because they look at you like you’ve got three-heads. And when you drive round the supermarket and you see the disabled parking spaces, and you can’t go in them – because you haven’t got a disabled badge – but you just desperately want to because you think, ‘How am I going to walk round a supermarket when I feel like death-warmed-up and can barely drag one foot in front of the other? But you have to park in a normal space.’

Tiredness, that no sleep will get rid of – and pain, no pain-killer will touch…

Nick: What about fighting that stigma? That must be very difficult. When people… You say you’ve got M.E. and people look at you as if the condition doesn’t exist. A lot of people don’t believe this condition exists…

Alison: ‘You don’t look like you’ve got anything wrong with you. It’s all a feeling – if you like. People can’t see your muscles in spasm, they can’t see that you’re in absolute, terrible pain all the time.’

Alison, ‘You know, people at work – the youngsters after a night on the town – they feel terrible, they feel tired; but they don’t know they’re born. They don’t know what pain is – day after day after day. And the tiredness that comes, not only with the fatigue that you’ve got with the M.E. but the tiredness from being in constant pain all the time – tiredness, that no sleep will get rid of and pain, that no pain-killer will touch.’

Alison, ‘And the debilitation that comes with that constant pain and that constant fatigue, you can’t see it. Even my own in-laws did not believe that I’d got something like that. I took them some M.E. leaflets and they started to come round and they could see what it was like for me…’

Nick: Alison forgive me, I’ve got to leave it there. Thank you so much for coming through this morning and I wish you all the best. I’m sorry for bouncing on to the next caller so quickly because I’d like to hear more about what you’ve got to say, but gosh I do wish you all the best. Thank you for coming through.

Nick: Tina is in Stowmarket. Good morning Tina.

1.23.00

Tina: ‘Good morning.’

Nick: Good morning. What would you like to say?

Even worse for children…

Tina: ‘I think it is even worse for children because everybody expects children to not want to go to school, or anything like that, and unless you’ve actually been through the fatigue in your muscles, in your joints, and the stomach cramps – because once you’ve overexerted yourself they’ve found you get an infection within your gut, that then transfers to the brain so that’s where the brain-fog comes.

Tina: ‘My son was eight when he was first diagnosed…’

Nick: And he was actually diagnosed with M.E. was he?

Tina: ‘Well, with chronic fatigue. Well, they actually put down, ‘chronic fatigue inflammation disorder’, which means that its all in the mind. Now as a parent, I trusted the doctors and thought ‘OK, fine. It’s just a matter of telling him his body is going to recover – and just recover’, which we all do, don’t we?’

Nick: And where… Sorry for being very brief this morning… Where is he now?

Housebound after CBT and GET…

Tina: ‘He’s at home. He’s housebound. He was housebound for quite a while after they gave him CBT and Graded Exercise Therapy…’

Nick: Tina I am really sorry. I am really sorry to people for having to whizz them through their stories. I really do apologise for that. I’ve just got so many things to get into the show this morning…

Tina: ‘I appreciate that.’

Nick: Thank you for coming through this morning. I promise you I will do more on this. We’ll take more calls and I will try and give you the time you deserve. And do call back in when I do that Tina, because I feel bad for rushing you through your narrative this morning. All the best to your son.

Nick: 01603 617321 if you are joining us. 7.54am.

1.24.46


1.54.55

Should new treatments be made available?

Nick: I want to go back to our story about M.E. Lots of you talking about this and clearly feel very strongly about it. People suffering from the debilitating condition says its time to look at whether new treatments should be made available. I’m talking about chronic fatigue syndrome or M.E., it causes a range of problems with the main symptom being extreme tiredness.

Earlier in the programme we heard from Tracy Grint from Taverham. She’s suffered for over thirty years. She was diagnosed when she was just eighteen years old. ‘It is frustrating. I would just like to wish that somebody out there would, would, look into it more and really understand it.’

Local campaigning…

Nick: Campaigners say they want NICE, which sets guidelines on the treatments given by the NHS, to look at evidence that new treatments could help sufferers. One of those campaigners is Barbara Robinson from the group, ME Support Norfolk. She’s been telling more more about the effects of M.E.

1.55.36

Barbara: ‘It’s very complicated and can be a profoundly disabling condition, that can be quite mild, or moderate, or it can be very severe. Unfortunately, about a third of patients are so severe they are effectively housebound – some bedbound – for many years.’

Barbara: ‘It’s a long-term condition, lasting fifteen to twenty year or more with little hope sometimes of recovery. The most severe are in receipt, effectively, of no proper services at all. Not from the NHS, and certainly no local services.’

Nick: What are the treatments at the moment that are on offer?

No testing and no further investigations…

Barbara: ‘Unfortunately, there is no single or collective treatment. There is only management. This means that people may have more than just M.E. – they may have other conditions as well – something called comorbidities, but the guidelines say there should be no testing and no further investigations of these complex symptoms and this renders people with no hope of getting to the bottom of their difficulties and resolving or improving on them.’

Nick: NICE, the body which approves treatments for the NHS, says it won’t review the treatments for M.E. Now I know that decision is very disappointing for you, do you think there’s a problem with the acceptance of M.E. as a condition, and that there’s still a lot of people who actually doubt it?

NICE guideline has been misinterpreted…

Barbara: ‘Undoubtedly, that’s a problem. We know from all sorts of research that about 40% of medical professionals including GPs don’t understand and don’t realise how severe this is and don’t recognise its true form.

Barbara: ‘There’s lots of confusion between people who have fatigue, from other reasons – other conditions – that get put together here; and the long and the short of it is that people are not being properly diagnosed, are not properly checked, therefore even management is inappropriate.’

Barbara: ‘And NICE over the last decade has done an enormous amount of damage, because the guideline has been misinterpreted and if you look back, what they recommended isn’t being followed. And yet many doctors will say that they understand it and they know about it, and they are delivering what people like NICE are saying is the way forward – but that is not the case.’

Nick: Norfolk CCG (clinical commissioning group) are meeting to discuss the way that they look at M.E. in the coming weeks. What would you like to happen? What would you like to be the outcome of that meeting?

Norfolk CCGs refuse to make M.E. a priority, but Suffolk has been brilliant…

Barbara: ‘Well, in fact there are four clinical commissioning groups in Norfolk and there’s one in Great Yarmouth and Waveney that covers part of Norfolk. Unfortunately, over the years, they have refused to make this a priority. It is not on their five-year forward plan. It is not discussed in public.

‘Suffolk has been brilliant. They’ve got it on their forward planning. They are taking the lead. They are going to coordinate a meeting between all seven CCGs to take this forward and Suffolk has put forward a solution that we are hoping the others will take seriously.’

Barbara: ‘But unfortunately, some of the CCGs in Norfolk and in Great Yarmouth and Waveney in particular, have said in public to a health watchdog that M.E. is not a priority for them. And they refuse to allow this to be discussed at governing-body level in public. We feel thwarted in making a case to them, to demonstrate just what a huge health inequality this is and what risks there are for the severely affected in Norfolk and Suffolk.’

Nick: Why the difference in Norfolk and Suffolk?

Virtually no support for those severely affected in Norfolk or in Suffolk

Barbara: ‘Because of the changes in the health service. I did an interview in 2009, here, as did Great Yarmouth and Waveney’s commissioning representative, and at that time we were on the cusp – having had the health overview and scrutiny – of delivering a service that met local needs and as supported by patients.

2.00.15

Barbara: ‘But the changes in the health service put delays in the programme, and we are no further forward than we were in 2009 in many respects.’

Barbara: ‘We have a worse situation – a reducing service – virtually no support for people who are severely affected in their own homes across Norfolk or Suffolk, and we have a refusal by Norfolk CCGs and Great Yarmouth CCG to talk about this in public and make it an important item.’

Nick: That was Barbara from M.E. Support Norfolk talking to me there. NICE who sets the guidelines for treatment given by the NHS sent us a statement, they say, there’s no new evidence to change its mind on how M.E. is treated, but it also said it had been consulting on its rules and would make a final decision later this year. M

Nick: Meanwhile the clinical commissioning groups in Norfolk also sent a statement. They say they are working with local patients and groups to improve services for people with M.E. or chronic fatigue syndrome.

Nick: Gosh. Quite a reaction to this by the way on the phones and on text. 01603 617321 if you want to join us this morning and talk about M.E. and what its like living with the condition.

2.01.25


2.31.38

BBC Radio Norfolk News

North Korea, Trump, Child seat-belts, Brexit, Campaigners for people with M.E. or chronic fatigue syndrome… wait, what?

‘Campaigners for people with M.E. and chronic fatigue syndrome say their treatment in Norfolk is a scandal. In both Norfolk and Suffolk they say that clinical commissioning groups aren’t making the conditions enough of a priority.’

 


^ Jump to top

BBC Radio Suffolk

The situation relating to NICE and local provisioning of NHS specialist services for people with ME/CFS was also featured by BBC Radio Suffolk on Tuesday.

Barbara Robinson from M.E. Support Norfolk was again interviewed, this time on the Mark Murphy show, and this was how it went on that occasion.


Transcript by Russell Fleming, Content Manager, ME Association.
All errors, omissions, and some slight edits, are my own.
russell.fleming@meassociation.org. uk

I have only taken pertinent extracts from the Suffolk broadcast.


26.52

Mark Murphy: 7.26am and this morning here on Mark Murphy at breakfast, we’re going to hear from campaigners and families who say that people here in our region with a debilitating condition are being let down by the National Health Service and also by the organisation that advises it on which treatments to use.

Mark: Symptoms of M.E. include extreme physical and mental fatigue, painful limbs. The condition is also called chronic fatigue syndrome. It can affect memory, concentration and digestion as well. Those with severe M.E. can be confined to a bedroom for years hardly able to move.

Mark: Jane is eighteen and lives in the Southwold area. She was a normal teenager who loved to cycle, swim and play the guitar but at fourteen, she became ill overnight. Jane doesn’t want us to use her real name, or her voice, so Jane’s words are spoken by an actor. She and her mother say the illness has been devastating.

Jane (actor): ‘There aren’t words to put it into… My body is uncomfortable and I am always hot and always in such pain. I am always exhausted and always feel sick. Just being in the world, feels like I am being attacked by things – smells and sounds. It’s just not… It’s just not a nice way to exist.’

Jane’s Mum: ‘So she’s always in pain. If you touch her it’s like a burning, agonising feeling for her. So we can’t touch her, can’t give her a hug. So she’s crying with pain – you can’t hug her. So, imagine what that’s like – as a parent not being able to hug your child. She can be sick – amazingly – up to fifty times a day.

Jane’s Mum: ‘A diagnostic test for M.E. would be fantastic, it would be like the Holy Grail. Because at the moment it’s a diagnosis of exclusion – so you don’t have all the other illnesses, therefore you must have M.E. which is a bit of a negative way of putting it and so I do think people rather get lumped into it.’

Mark: We’ll hear more from Jane and her Mum later in the show after eight today. Barbara Robinson is from [M.E. Support Norfolk], and is in charge of their Suffolk youth and support group. She has a relative who suffers from chronic fatigue syndrome, or M.E., which causes a range of problems. She says that NICE, which sets the NHS guidelines, isn’t doing anything to see if new treatments could work for sufferers.

Barbara: ‘Well, I have two family members that have this diagnosis – one diagnosed in 1998 and the other in 2006 – so I’ve got twenty years of more personal and professional experience because I work with young people that have this condition as well.’

Mark: It has been around and recognised for some time now, yet some people still don’t actually believe it exists. That the person is just being lazy, and just can’t be bothered to do anything. What do you say to those people?

Severely affected just don’t exist as far as NHS is concerned

Barbara: ‘This has been recognised time and time again, since the fifties and sixties, but the World Health Organisation by the British Medical Association, but unfortunately myths are perpetuated which suggest that anyone with a bit of fatigue has got M.E. and they are conflating sheep and goats.

Barbara: If they were to separate people into fatigue for other reasons – other conditions – and focus on this critically damaging and devastating condition, then we would make some progress. There are far more people with M.E. than with M.S. And it often presents in a much more serious form long-term than M.S. And yet the most severely affected are getting effectively nothing – they just don’t exist as far as the NHS goes.

Mark: The symptoms and what it can lead to – what have been your experience of that? What have you seen?

Barbara: ‘I have seen young people and children as well as adults having to be cared for in nursing-homes, having to be tube-fed, bedbound, in agony, with no quality of life and with no prospects for improvement in their situation. Because tests and investigations just don’t seem to be offered to get to the bottom of things that could be alleviated when you have this label of M.E.’

Mark: Like what? What things could be tested for to help the symptoms?

Barbara: ‘Well the whole population is suffering through changes in food supply, and diet and lifestyle and that’s led to very simple things that we’ve discussed before, like deficiencies which are cheap and easy to test and if they are addressed they will improve how people feel.’

Barbara: ‘Added to that you’ve got pain, and sleep difficulties, and all these specific symptoms that cause huge problems could be looked at if the person was given ongoing care and support, tests and investigations to begin to build towards a better situation and better health.’

Mark: So simple tests like a vitamin D deficiency then? That would be a step forward for people if they are suffering those symptoms you are saying. I mean it could be something as simple as a vitamin D deficiency couldn’t it?

NICE management totally inappropriate

Barbara: ‘It certainly could, however unfortunately the NICE guidance suggests that further investigations and further tests – very simple, straightforward things – are not appropriate and all that we can do is not treat but just manage. And the management that they offer is totally inappropriate for severely affected bedbound people who represent thirty per cent of this population.’

Mark: So you want NICE and the Government to be looking at this and saying, right OK we are going to get to the bottom of this, we are going to try and find out what is wrong with these individuals? Rather than just help them cope?

Barbara: ‘Absolutely. And in 2014 the director for the clinical guideline from NICE, Professor Mark Baker, said the existing guideline is not fit for purpose. Yet three years on they are refusing to even discuss this in a sensible way and move things forwards. The science is there. The evidence base is there. They are refusing to even look at it let alone discuss it.’

Mark: NICE which sets the guideline for treatments on the NHS, sent us a statement, which said there has been no new evidence to suggest it should change its mind on how M.E. is treated, but it also said it had been consulting on its rules and will make a final decision later this year. Meanwhile the clinical commissioning groups in Norfolk also sent us a statement saying they were working with local patient groups to improve services for people with M.E. or chronic fatigue syndrome.

33.50


From 1.08.00

Further interviews with Jane and her Mum – who speaks so eloquently about M.E. including about how NICE and the UK medical profession needs to ‘up its game’ and of the recent research into cytokines from Stanford University in America – and with Clare Ogden from Action for M.E.


^ Jump to top



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Breaking the Chains of Victimhood When You’ve Been Abused

“Toxically shamed people tend to become more and more stagnant as life goes on. They live in a guarded, secretive, and defensive way. They try to be more than human (perfect and controlling) or less than human (losing interest in life or stagnated in some addictive behavior).” ~John Bradshaw- Healing the Shame That Binds You

Do you feel like a victim? Are those around you suggesting that you are acting like a victim? Are these same people telling you to get over it and move on? Do these judgments and statements feel harmful or helpful for you? !

Most people making these harmful statements and suggestions do so with very little understanding or experience with being a victim. They have not taken the time to really listen to your story of what has happened in your life. They make their judgments from the place of never being a victim or not being willing to accept that they were.

People with a history of victimization do not need tough love, harsh words, or anyone’s reality check. Those things are most likely part of what happened to them. They need love, support, empathy, and compassion. If you are unable to give these things to them, the best thing you can do for them is to please stay out of it!

With that said, how do we break the chains that our victimization has had us bound in for so long? I know that many of the people I’ve worked with, like me, never totally allowed themselves to be a victim. We have lived our lives from the perspective that our victimization was somehow how our fault. It is this thought process that keeps us stuck.

I was sexually abused at the age of five by my mother. At that age, I didn’t have the cognitive ability to understand that my mother was at fault or that she could ever hurt me. I only had the ability blame myself; I must have done something wrong or been bad.

In order for us to break the chains, we must be willing to give the responsibility, shame, and guilt of what happened to us back to our victimizer. When we hold on to these feelings we are kept in limbo. It keeps us trapped between the pain of our victimization and the feeling that we were responsible for what happened to us. It’s no wonder we feel trapped.

In my case I unconsciously chose to bury the feelings from my abuse as deep and hidden in my psyche as I could. Of course, today I know that they never went anywhere except out of my conscious thoughts. Those feelings continued to work in my life like background programs running on a computer. Not seen, but affecting every area of my life.

“I think the first step is to understand that forgiveness does not exonerate the perpetrator. Forgiveness liberates the victim. It’s a gift you give yourself.” ~T. D. Jakes

Forgiveness is the last link in our binding chain. But, how do we get there? The most important thing to understand about forgiveness is that it comes at the end of a process. Very often we stay stuck because we misunderstand this process and think that it starts with forgiveness.

That may work for a while, but it’s like cleaning a room by throwing everything in the closet and closing the door. It’s merely an illusion, and a temporary fix at best. Forgiveness is more than a cerebral action. To be complete it must include our soul, heart, emotions, and our physical body.

I know for myself it had to start with the complete acceptance of the fact that I was victimized. No more minimizing what happened or making excuses for my victimizer. No more false macho pride telling me I was a punk to admit I had been taken advantage of and that it hurt.

My start was sitting alone with myself. No music, phone, TV, or reading material. Just me, myself, and I. You would think that this wouldn’t be very difficult. Well, it was for me, and after about ten minutes I thought I was going to rip out of my skin. The difficulty with it was that I was forced out my fantasy world and into reality. I was no longer running, ducking, dodging, or sneaking away from my life.

It was too much for me to handle on my own, so I decided to seek professional help. I found a great therapist who worked with me one on one and in a group setting. I always suggest to people to err on the side of caution and do this work with a professional.

I was stepping into a part of my emotional world that I had spent a great deal of time and energy avoiding at all costs. I knew that the way to forgiveness was through my abuse and its emotions, not over or around it. To do that, I needed an experienced guide.  

In therapy, we talk a lot about recovery by discovery. The peeling back layers of the onion. This describes my journey through my emotional quagmire to a T. As with most things, the first layer was the hardest. That was because my first layer was composed of anger, which has always been the hardest emotion for me.

I had been told all my life that it was not okay for me to be angry. I was too big and I might hurt someone.

When my siblings maliciously teased me and I did not have the words to stop them, my only resolve was to beat them up. In my parent’s eyes, I was then the one acting inappropriately and was punished. By making me the perpetrator in the situation, they basically were shaming my anger.

So a great deal of work was needed for me to be all right with tapping into my anger. Once I became comfortable with feeling angry, the next obstacle was to be able to tap into my anger while working in a session with my therapist and closing the lid on it when I was done.

My anger had been bottled up and pressurized for so long it was like a blast furnace. I had to learn to cap it off so I did not leave with it raging and blast those around me like a flamethrower.

Once that work was done, I learned that the anger was covering my pain. So my process became one of removing layers. Finding and releasing the anger then feeling and dealing with the pain. Over and over again until I reached its core, which was all pain.

I will always remember spending a whole session with my therapist on the floor sobbing and wailing as my body released waves and waves of pain and hurt.

Then a miracle occurred: I was done. It was over. Not like a faucet was turned off. It was like a vessel becoming empty.

It was shocking and I looked at my therapist expecting her to ask me why I closed down. She looked at me with the most beautiful and empathic look I have ever seen and all she said was “You are done.” Not with all the work that I needed to do but with being a victim of my sexual abuse.

I was now in a place where I could completely forgive my mother with no residual feelings of attachments. I have learned that what works best for me when I have made big shifts like this in my healing is to ground them in a ceremony.

So, I wrote my mother a letter and traveled to where her ashes were cast. I read the letter out loud and then burned it. The last thing I did was to say aloud that I forgave her and have a friend cleanse me with burning sage. I walked away feeling complete and resolved.

Did that mean that I was whole and complete? Of course not; I still had a lot of work to do. But I now knew that I had worked through the biggest and most painful victimization of my life. If I could do that, I could handle and was willing to do any other work needed to be done.

The greatest act of love I have ever given myself was the willingness to do what I needed to do to heal. It no longer feels like work but it is now a blessing I have been given. Every day I pray that all those who need to heal choose to do this work. My hope is that you do!

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About Paul Hellwig

Paul Hellwig is a Certified Spiritual Life Coach who empowers adult children of alcoholic and addicted families to live the life they have always dreamed of. He is an adult child of an alcoholic and a recovering addict with over twenty-seven years clean. He’s dedicated his life to helping others on their spiritual and healing journey. Visit him at  thejourneytohealing.org.

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Wednesday, 16 August 2017

Golden Yellow Labradorite, Manage Personal Power And Balance Energy

Golden Yellow Labradorite

Learn how Golden Yellow Labradorite assists you to balance your masculine feminine energy and manage your personal power. It may aid you to manifest money, and can be used in meditation to connect with angels.



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Ayurveda Mahodadhi Dhanya Varga – Types Of Rice

By Prof. Vd Rangaprasad Bhat. This is the first part of a chapter about grains and varieties of rice as explained in Ayurveda Mahodadhi, written by Sushena in 14th Century.   Shashtika Shali – Rice harvested in 60 days Snigdha – unctuous, oily Vatahara – useful in treating disorders of Vata Dosha imbalance  such as neuralgia, […]

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Health Benefits Of Curd From Different Animals

By Vd. Rangaprasad Bhat. Benefits of curds from different animals and curd recipes with spices areexplained in Ayurveda Mahodhadhi, a text book by Sushena, of 14th century.  Curd from cow milk: Atisheeta – very coolant Deepana – improves digestion strength Balavardhana – improves strength and immunity Vataghna – Balances Vata, useful in neurological disorders such […]

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Research Shows EFT Tapping Can Ease Your Dental Anxiety

Are your teeth suffering out of a fear of visiting the dentist? You’re not alone. But one study reveals how to brush away that dental anxiety and bring a smile to your face.

Your alarm clock sounds and you sit straight up in bed. Fear grips your very soul – today is your dentist appointment.

You’re sweating and your heart is pounding as you get dressed, brush and floss your teeth (twice) and look for your car keys.

You wonder if you should call your best friend and ask if she’ll go with you. You wonder if you should drink some Chamomile tea because it sometimes relaxes you…

You wonder if you should call the receptionist and tell her that you’ll have to reschedule because you just found out your cat has shingles. Then you remember, “24 hours notice is required.” Darn!

But what if somebody told you that a ten-minute anxiety treatment was available that would make that appointment bearable, or even somewhat pleasant? Would it be worth trying?

The Ten-Minute Remedy for Dental Anxiety

Fear of dental treatment is a common phobia, with up to 30% of patients in the U.S. reporting anxiety related to going to the dentist.

This particular research study is exciting not only because it shows that EFT Tapping is an effective way to calm pre-dental appointment jitters, but also because the duration of the treatment, just ten minutes, is so manageable within the context of a busy dental practice.

In the study, 30 adults waiting for dental treatment were recruited to test out the effectiveness of Tapping to calm their dental fears.

Both male and female, ages ranging from 18-70, when asked to rate their anxiety on a scale from 0 to 10, reported a 6 or above. Each were then given a 10-minute EFT treatment (which was actually 4 minutes of explanation and 6 minutes of tapping).

First, the patients described their anxiety. Then, the EFT facilitator created a setup statement using the patients’ own words. For example, “Even though the sound of that drill scares me to death, I deeply and completely accept myself.”

Finally, the facilitator asked the patients to tap on the acupressure points shown to them while describing their anxiety and repeating the self-acceptance phrases.

After the session, patients were asked to rate their anxiety from 0-10 again.

All of the patients reported a decrease in their level of anxiety.

83% experienced a drop of a minimum of four points and 73% ended up with an intensity rating of 3 or less at the second reporting period.

Researchers noted that usually the goal for a post-treatment anxiety rating is 0. In dentistry, though, it’s typical for patients to feel a bit anxious as a result of activation of the sympathetic nervous system, so a 2 on the scale was considered normal.

This study was also unusual in that the facilitator, a certified EFT practitioner, was also the dentist. (It’s neat that Tapping is getting out there into the mainstream, though, isn’t it?)

EFT Tapping has been shown through numerous other studies as an effective treatment for anxiety, fibromyalgia, PTSD, test-taking, public speaking, and a host of other issues.

It has also been shown to have lasting effects. The subjects of these other studies not only report a drop in their anxiety at the time of the treatment, but when contacted for follow-up, they also report that their anxiety level had remained low over time.

An Easy Pill to Swallow

With so many prescription anxiety medications being given out like candy these days, a simple 10-minute Tapping exercise to ease your dental fears is very good news!

Given how much research has already demonstrated the effectiveness of EFT Tapping in reducing anxiety, and how short an EFT session needs to be to work, perhaps dentists will look into getting their office staff trained in EFT to pass on this method to their patients.

If you, yourself, would like to learn how to Tap, we’ve got plenty of resources available for you. Or, if you’d like to work with a qualified practitioner for easing your dental phobias, we’ve got a whole directory of expertly trained individuals who’d love work with you.

Perhaps the next time you wake up on the day of your dental appointment, you won’t sit up in a cold sweat. Instead of panicking, you’ll spend 10 minutes doing some Tapping.

Then you’ll leisurely eat some granola and cantaloupe, sip some strong java, and drive to the appointment, thinking about what you’re going to wear to the wedding you’ve been invited to, pondering a gift idea for your friend’s retirement party, or looking forward to the cat show you and Tuffy will be attending on the weekend. 😊

Until next time…

Keep Tapping!

Nick Ortner


Do you have a fear of going to the dentist? Have you tried EFT Tapping to relieve your anxiety? Comment below.

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Join me on August 21, 2017 7:00pm with thousands of women around...



Join me on August 21, 2017 7:00pm with thousands of women around the world authentically connecting and practicing being in Sacred Sisterhood.
 To unite for a global synchronized meditation, prayer, and action to transform, uplift, and inspire the world!
Topic:Embracing the Shadow:
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A 7-Step Plan for Finding Love After a Devastating Breakup

“Resilience in love means finding strength from within that you can share with others.” ~Sheryl Sandberg

It took me a couple months to start repairing my broken heart after the toughest breakup of my life. I thought we were going to spend our lives together, but the gods of love had other plans.

After I’d grieved in healthy (and not-so-healthy ways) I knew I could take two paths: stay stuck in my misery or pick myself up, dust off my sadness, and make a plan to move on.

And now it’s time for you to move on and find love again, too.

I know it’s not easy. For years I believed my ex was “the one” and the thought of finding someone new after our breakup was terrifying.

But I got back on my horse and kept riding. I felt the fear of rejection, putting myself out there again, playing the “dating game,” trusting someone new, and wasting my time with people I didn’t connect with.

But finding love doesn’t have to be complicated and scary if you follow a plan, just like anything else in life.

You want to start your own business, take a vacation, or get out of debt? Make a plan.

You want to find love? You’ve got to make a plan for that, too.

If you don’t have a plan you’ll continue stumbling around in the dark hoping you’ll miraculously find true love. So if you’re struggling to find love and tired of the same old patterns leading you into the arms of the wrong people, then listen up…

Step 1: Let go of your ex.

Have you really let go of your ex and moved on from your breakup?

If you haven’t let go, you’re not going to find love. Period.

On the first date I went on after my breakup I talked about my ex. A lot. I knew I was breaking the sacred rules of first dates, but I didn’t care. I wasn’t about to hide my true feelings. Because the fact was I was still sad about it. It was clear to me that I wasn’t yet over the breakup.

But I also understood that if I had my ex and my breakup on my mind there was never going to be room for new love to enter.

Do you still have negative feelings around your breakup? Are you holding onto anger, shame, or resentment?

If you want to find a new partner and true love, you’ve got to let that stuff go.

Whether you’re getting over a recent breakup or a breakup that happened months or even years ago, you have to let go.

How?

First, stop avoiding and suppressing your negative feelings. We avoid dealing with our feelings in all sorts of ways: binge-watching television, eating, sex, alcohol, drugs, and telling people, “Everything is fine,” when we’re actually a hot mess.

Instead of avoiding and suppressing, let your feelings flow through you and get comfortable with the discomfort. Don’t chastise yourself for the feelings. Ask yourself, “Where is this coming from?” and, “Why is this coming up NOW?” Getting curious is always healthier than suppression.

Second, get back to doing things you love. Sometimes when we’re in a long-term relationship, we lose ourselves. Go do things that light you up inside and bring you joy. Go take that hip-hop dance class, join a new gym, or write the book you’ve been putting off.

And finally, make sure you have someone who listens to you without judgment and will let you vent when you need to. You think you don’t have someone to talk to? Think harder. You might be surprised of how willing people are to help and listen when you tell them how much you’re hurting. Exploring solutions is always easier when we have someone who listens instead of feeding us useless clichés like, “Time will heal.”

Other solutions to exploring our feelings are support groups in your community, online forums, or starting a journaling practice. Get the stuff out and you’ll be surprised how much easier it becomes to let it go.

Step 2: Believe that you have more than one soul mate.

“But Eric,” you say, “I already found my soul mate and now they’re gone!”

It’s okay. All is not lost.

Because there’s no such thing as having only one soul mate on this planet. If you’ve already found one, good for you! But guess what? There are more out there!

How do I know that for sure? I don’t. But if you want to go on staying stuck in your breakup and feeling sad about losing your soul mate, I can guarantee you won’t find a new person who brings out the light inside of you, who makes you feel special, wanted, and supported.

Believing you have only one soul mate is nothing more than a limiting belief—and limiting beliefs are meant to be overcome.

If you haven’t yet found a soul mate, this is still an important point to understand. If you convince yourself there’s only one soul mate for you out there, you’re going to put too much pressure on every new relationship you enter into.Remember, there are multiple soul mates out there for you. But I promise, if you’re lying on the couch watching Netflix, you’re not going to find them.

Step 3: Don’t date people just because they’re the exact opposite of your ex.

When you go through a devastating breakup you convince yourself that you’ll never date someone like your ex ever again! “That’s it!” you scream, “I’m going for someone totally different than my ex!”

Your ex hated spontaneity and adventure? You’re going after a rock-climbing, world-traveling, adrenaline-seeker.

Your ex had blonde hair? Only brunettes from now on!

Your ex didn’t like reading, cats, Star Wars, trying new restaurants, the opera, camping, people-watching, or road trips? You get the idea.

But the problem with this approach is that it’s a knee-jerk reaction. Instead of thinking about what you really, truly want in a relationship, you jump in blindly. Dating someone just because they’re not like your ex probably won’t end well.

The solution?

Go to Step 4.

Step 4: Get clear on your values.

Our values are the guiding lights in our lives.

If you’re not clear on what you value, how can you find someone who shares your values? Because if you’re dating people who don’t share the same values as you, it’ll never work.

Think about your past relationships. Remember those times when you first started dating someone and you discovered something that didn’t jive with your values? And remember how you brushed it to the side and said, “It’s probably not that big of a deal. Maybe I’ll change….or maybe they’ll change.”

Sound familiar?

Fast-forward to your breakup. I’ll bet some of those old clashes in values came up throughout the breakup process, didn’t they?

Get clear on your values and don’t negotiate, undermine, or reduce them. Stay true to them and find a partner who shares your values. If you do this, you’ll be taking a huge step towards finding love again.

Step 5: Say “no” to relationships that are a waste of your time.

It’s hard to say “no.” We don’t like hurting people’s feelings, so we say “yes” to things we shouldn’t. Then we kick ourselves for not having had the guts to say “no.”

When we delay our “nos” we’re wasting our time and the other person’s time. We go on third, fourth, and fifth dates with people who we’re really not interested in, but we just can’t tell them the words, “I’m sorry, I just don’t want to be with you.” Instead, we draw it out into a painful process of indecision, stress, and fear.

How do you say “no” to someone you’re not interested in continuing dating?

You say, “I’m sorry, but I know what I’m looking for in a partner and you’re not that person.”

Sounds harsh?

Get used to it. Because if you’re clear on your values after Step 4, there’s no reason to waste your time with people who don’t align with what you’re looking for.

And really, what’s so bad about saying, “You’re not the partner for me?” Shouldn’t people appreciate honesty?

Yes, they should. But people aren’t like that and they might feel hurt. But that’s their problem, not yours. Ultimately, that honesty is going to help both of you move forward in a more healthy way.

Stay true and honest to yourself and be as compassionate as possible when you say “no.” After that, it’s up to the other person to accept it.

Step 6: Improve yourself.

No matter how many self-help books and articles on Tiny Buddha that you’ve read, we all have blind spots and weaknesses.

After my latest breakup, I realized I needed to work on some things. I reflected on my fear of commitment. I got clear on my core values. I worked on my ability to communicate my feelings around tough subjects like sex, money, and having children.

I read new books, worked with a coach, and traveled by myself. I met new people and shared life experiences with them in a vulnerable way.

It’s really hard to take a long, hard look in the mirror and ask ourselves, “Where have I been going wrong? What can I do to make myself better?” It’s so much easier to point a finger and say, “It’s your fault! Not mine!”

But true growth can only happen when we look inside ourselves. When you grow and become a better version of yourself you’ll develop more confidence—and we all know confident people are a lot more likely to find true love.

Step 7: Work it!

If you’re ready to find someone new, you have to go out and find them.

It drives me a tad crazy when people say, “I want to find love, but if it happens it happens. I’m not going to go out looking for it! I’ll let the universe do its thing.”

Are you kidding me? When is the last time something that made your life better came to you while you were sitting around doing nothing?

If you want to find love, go out there and look for it!

When we put ourselves out there, get out of our comfort zones, and face our fears, amazing things start to happen.

Go to social gatherings with new people. Find common interest groups in your community. Talk to a stranger on the bus or metro. Hell, give online dating a try!

If you want to find love, you have to get out there and meet new people. Sure, each time isn’t going to be a fruitful experience, but that’s what it’s about. When good things start to happen (which they will) you’ll look back and understand all the effort was worth it.

Now, this seventh step isn’t about obsessing over finding love to the point that it’s unhealthy. If you’ve followed the steps above this shouldn’t be a concern because you’re now feeling more confident in your own skin. If you get better at saying “no,” get clear on your values, and improve yourself, then you’re ready to find love.

But if you’re afraid of being alone for the rest of your life and desperate to find a partner no matter how wrong they are for you, you’re not ready for Step 7. Go back and work through Steps 1 to 6 until you’re ready to find love for the right reasons.

Don’t forget…

Finding love isn’t easy. This plan can take a long time to master.

But when you find that special person you’ll know that all the effort, struggle, rejection, failure, and time-investment was worth it.

True love is a beautiful thing. It shouldn’t be degraded to a pipe dream for the lonely-hearts-club. True love is something that everyone should strive for because life is a lot more fun when we can share it with a person who brings out the light inside of us.

If you haven’t found love yet, please don’t give up. It’s out there. And if you follow the right plan, I know you’re going to find it.

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About Eric Ibey

Eric Ibey is a Breakup Coach and member of the International Coach Federation. He's on a mission to help people move on from tough breakups and find more confidence, happiness, and peace faster than they imagined possible. Join his Free 3-Week Breakup Challenge TODAY and start reframing your breakup into an opportunity for self-growth.

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