Holistic Healing with Pixie: Undiscovered – Sick and Tired: The PACE Trial

Wednesday 31 May 2017

Undiscovered – Sick and Tired: The PACE Trial

30 May 2017 A new podcast from Science Friday

Undiscovered When researchers publish a new study on chronic fatigue syndrome, a group of patients cry foul—and decide to investigate for themselves.

Written by Lauren Young

A landmark study on chronic fatigue syndrome sets off a multi-year battle between patients and scientists. On one side, we have a team of psychiatrists who have researched the condition for decades, and have peer-reviewed studies to back up their conclusions. On the other, a group of patients who know this condition more intimately than anyone and set out to expose what they think is bad science.

GUESTS

Julie Rehmeyer, author of “Through the Shadowlands”
Michael Sharpe professor of psychological medicine at Oxford University
David Tuller, journalist and visiting lecturer at UC Berkeley
Ivan Oransky, journalist and co-founder of Retraction Watch

FOOTNOTES

The PACE trial home page, includes trial materials, FAQ, and links to the papers that came out of the trial.
The PACE trial data and readme file.
Virology Blog including David Tuller’s original three part series criticizing PACE (“Trial by Error”), as well as responses from the authors, and more.
Patients’ first reanalysis (published on the Virology Blog) of the PACE recovery paper.
They later published the re-analysis in the journal Fatigue and the PACE researchers responded to the patients’ re-analysis.
PLOS ONE expression of concern, including a response from the authors.
Retraction Watch’s recap of the legal proceedingsregarding Alem Matthees’ request for anonymized trial data.