Sunday, 22 April 2018

ME Association Factsheet – What you need to know about M.E. | 22 April 2018

 


The ME Association produced the following leaflet to help with media enquiries, but it could also prove useful to help in any efforts to raise awareness of M.E. especially during ME Awareness Week (7th – 14th May).

It perhaps works best as a shared online document – as it contains interactive links to additional sources of information – but it also works well in printed form.

We have made it available as a free download, and it also appears as such in our online shop if you wanted to make it part of an order, for example.

The Factsheet comprises three pages of information, the first page is reproduced below:


ME Association Factsheet

What you need to know about M.E.

M.E. (myalgic encephalopathy or encephalomyelitis) is a complex multisystem disease with a wide range of disabling symptoms.

  • M.E. is classified by the World Health Organisation (WHO) as a neurological disease. WHO classification is recognised by the Department of Health, the Medical Research Council and NICE (National Institute for Health and Care Excellence).
  • M.E. is estimated to affect around 0.2-0.4% of the population (c.250,000 people in the UK) – including children and adolescents.
  • M.E. affects all social classes and ethnic groups.
  • M.E. is the commonest cause of long term sickness absence from school.
  • M.E. can affect more than one family member – suggesting that genetic factors made be involved in predisposing people to develop the disease when a triggering event occurs.
  • M.E. has been estimated to cost the UK economy £3.3bn each year (see page 2).
  • M.E. can cause greater functional impairment than many other serious medical conditions, including multiple sclerosis and cancer.
  • M.E. is a devastating disease with no established biomarker. Significant abnormalities in the central nervous system, immune system, endocrine (hormone producing) system, and in muscle (causing energy metabolism impairment), have all been found to be involved in the disease process.
  • M.E. is not a minor ailment and there is a wide spectrum of severity. Around 25% of people are severely affected – being house-bound, or bed-bound and often requiring a wheelchair if they can mobilise – at various stages during the illness.
  • M.E. can affect some people very severely, leading to atypical seizures, speech and swallowing difficulties and extreme intolerance to light and sound. These people will be bedbound, require continuous 24-hour care and may require tube-feeding.
  • M.E. in most cases can be linked to a previous viral infection – from which people do not seem to have recovered. In some cases, M.E. can follow a vaccination, or other known triggering event.
  • M.E. is generally regarded as a fluctuating condition – meaning that the symptoms can vary in form and intensity throughout the day, from day to day, and week to week – making it very unpredictable.
  • M.E. is diagnosed following careful assessment of clinical history, physical examination, exclusion of other possible causes of symptoms and the application of diagnostic criteria. There are currently no blood or other diagnostic tests available.
  • M.E. has a unique and defining clinical feature known as post-exertional malaise – a delayed exacerbation of symptoms that can follow even minor physical or mental exertion.

Please download the Factsheet and help to raise awareness of M.E.


Help support the ME Association

Please donate, whatever you can afford, to help us continue with our work and make the UK a better place for people with M.E. Just click the button below:

Or why not join the ME Association as a member and become part of our community?
For an annual payment you will not only be helping to keep us doing what we do best, but you will receive ME Essential magazine – with exclusive content – delivered straight to your door. And, if you join by annual standing order, you can select £10 of free leaflets from the most extensive range available on the internet.


 



from ME Association
http://www.meassociation.org.uk/2018/04/me-association-factsheet-what-you-need-to-know-about-m-e-22-april-2018/

from http://www.meassociation.org.uk

#cfsme

Saturday, 21 April 2018

Top Crystals For Happiness - Fill Your Life With Joy!

Citrine Crystals For Happiness

Discover crystals for happiness, stones known to boost inner joy, peace of mind and optimism. See the list of stones that stimulate feelings of exhilaration, playfulness, good spirits and laughter!



from Healing Crystals For You
https://www.healing-crystals-for-you.com/crystals-for-happiness.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

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Spiritual Grounding - See List Of The Symptoms Of Being Ungrounded

Black Tourmaline

Learn about spiritual grounding. What is the purpose of doing grounding? See the list of symptoms of being ungrounded and discover how earthing can assist with grounding.



from Healing Crystals For You
https://www.healing-crystals-for-you.com/spiritual-grounding.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

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How to Care for an Introvert | Spiritual

onlinecounsellingcollege: How to Care for an Introvert 1. Respect their need for privacy and to...

from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/173166601951

from http://spiritualseeker77.tumblr.com/

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Beryllonite Is A High Vibration Crystal - Aids Release Of Fear

Beryllonite

Beryllonite are high vibration healing crystals that bring joy and aid well-being. Wonderful meditation stones that aid spiritual growth and boost psychic visions and contact with guides and the angels.



from Healing Crystals For You
https://www.healing-crystals-for-you.com/beryllonite.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

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Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes | 21 April 2018

 


Forward ME

Notes of meeting held on Wednesday 28 March 2018

1. Apologies

Hannah Clifton ME Trust, Dr Paul Worthley ME Trust, Dr Gareth Tuckwell ME Trust, Bill and Janice Kent ReMEmber, Cath Ross 25% ME Group, Tony Crouch 25% ME Group, Christine and Tanya Harrison BRAME.

2. Present

Carol Monaghan MP, Dr William Weir, Dr Charles Shepherd ME Association, Jane Colby Tymes Trust, Sarah Reed #MEAction, Clare Ogden Action for ME, Countess of Mar (Chairman).


You can also read the minutes on the Forward ME website.


3. Science Media Centre

There was discussion about the Science Media Centre Factsheet “CFS/ME – The illness and the controversy” which was published on the SMC website on 20 March 2018. It was agreed that the Chairman would write to the Chief Executive and to the Chair of the trustees of the SMC to object to the inaccuracies and distortions and to request that the factsheet be retracted.

4. Dr Diane O’Leary

Dr Diane O’Leary, Kennedy Institute of Ethics, Georgetown University, Washington DC.

Dr O’Leary presented a paper on the move within the WHO International Classification of Disease team working on the ICD11 revision to reclassify a number of disorders previously grouped as MUS (medically unexplained symptoms) into one large symptom cluster with criteria that would be used in primary care and which would ensure that all patients who qualified would be offered mental health care rather than medical care. None of these criteria were evidence-based.

(See “Bodily Stress Syndrome” info sheet).

The group discussed Dr O’Leary’s concerns and various actions were suggested. These included:

  • Publication of the info sheet on Forward-ME website with members either linking to it or publishing it themselves. It was agreed that this would not be done until after 12 April 2018 as there were to be discussions with the WHO.

(N.B. Subsequently, it was decided between the Chairman and Dr O’Leary to publish the info sheet as it was important that the information be disseminated as soon as possible).

  • The Royal Colleges of Physicians and of General practitioners might not be aware of the effects that this reclassification would have on their members’ diagnosis of patients’ symptoms so the Chairman agreed to write to them.
  • Other organisations representing people with MUS should be alerted so that, if they wish, they can make representations to the WHO. The Chairman would find as many of them as possible.

It was agreed that there should be another meeting soon so that further activities could be organised.

Note: A further communication about the possible changes to WHO coding has subsequently been placed on the Forward ME website dated 9 April 2018.

5. Any other business

Christine Harrison reported to the Chairmen that she was in regular contact with staff from Capita and that they were working on a new training programme for health professionals.

Charles Shepherd said that he was doing the same with Maximus.

Bill and Janice Kent asked that they be involved in any action that was to be taken with regard to BSS.

6. Date of next meeting

The next meeting would be held at 2.00 pm on Tuesday 1 May 2018.


You can also read the minutes on the Forward ME website.


 



from ME Association
http://www.meassociation.org.uk/2018/04/forward-me-meeting-with-dr-diane-oleary-about-possible-who-coding-changes-21-april-2018/

from http://www.meassociation.org.uk

#cfsme

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/173151321312

from http://spiritualseeker77.tumblr.com/

#spiritual

Friday, 20 April 2018

Were You Born Under The Taurus Sign?

Indicolite Blue Tourmaline

The Taurus Astrological sign starts on April 21st. If you were born under this sign check out the list of Zodiac birthstones for Taurus, to help you to find the best Taurus birthstone to use to aid your life.



from Healing Crystals For You
https://www.healing-crystals-for-you.com/taurus-birthstone.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

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